Join the fun & help Teegan.

$100 per team of 4 or5. Double elimination. Winning team will get a cooler full of prizes! We will also have multiple baskets that have been donated that you can win by purchasing a raffle ticket! Rubber bracelets also for sale!

MEF2C Haploinsufficiency Syndrome (MCHS) is a profoundly challenging neurodevelopmental disorder that occurs when one copy of the MEF2C gene is deleted or mutated resulting in dysfunction of the MEF2C protein. First described in 2009, these variations in the MEF2C gene cause significant cognitive and physical impairments. Individuals often experience severe to profound developmental delay, low muscle tone (hypotonia), seizures, and stereotypic movements. We are fortunate to have two accomplished scientists who have been studying the gene and investigating treatment options for several years. The US MEF2C Foundation was created with the mission to accelerate research and development to find treatments and a cure for patients with MEF2C mutations.