Events
Upcoming Events
Clinical Assessments at Boston Children’s Hospital
October 17 - 19, 2024
Families are invited to join us in Boston for a landmark clinical assessment, family gathering and research conference this October.
MEF2C Research Conference
Saturday, October 19
Join us on Saturday, October 19 to hear from experts from the fields of genetics and neurology about future research and treatment possibilities.
MEF2C Family Get-Together
October 18, 2024
5:30 - 7:30 PM
Join us for a chance to enjoy dinner and drinks and meet other families with MEF2C related disorders! This will give us all a chance to chat with one another and unwind after the week's clinical research assessments have concluded. This social event will be hosted at the home of a local MEF2C family.
Past Events
Rye Country Day School, Dunn Performing Arts Center
Rye, NY
April 2024
Two Piano Journey Benefit Performance
Rye Golf Club
Rye, NY
July 2023
Rye Golf Club Swim-A-Thon
We challenged Rye Golf Club swimmers to swim laps for MEF2C Awareness. Proceeds went towards our mission to accelerate R&D of treatments for MEF2C mutations.
Lake Orno Beach
Lake Orno, Minnesota
August 2023
Lake Orno Sand Volleyball Tournament
Participants enjoyed a fun filled afternoon of sand volleyball for MEF2C awareness!